Chakiris for CHARGE Syndrome |
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In the summer of 2013, George Chakiris met Ysabel Clüver, a young individual with CHARGE Syndrome, a rare genetic disease affecting one in 8,500 to 10,000 individuals worldwide. Her passion for the 1961 classic film, West Side Story, and for the character Bernardo led to their encounter. She had dressed as Bernardo the Halloween prior to meeting him and he was enthralled to know that young people like her appreciated the film. He was so very generous to take the time to meet with Ysabel and even brought his Oscar along for her to see! This site is dedicated to the friendship that has ensued, and its intention is to share information about CHARGE Syndrome, raise funds to help with further research on this disease, and to highlight other causes both Ysabel and George care about. You can always come back to learn the latest about George and Ysabel.